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About Philly

Philly Baer came into the world on April 1, 2004 with PCH (Pontocerebellar Hypoplasia). This rare brain malformation caused multiple physical and cognitive handicaps.

Philly persevered.

Our Philly Baer. His laughter touched people's hearts. One couldn't help but listen and share in the moment. His entire face smiled, radiating joy.


He was a really happy kid, really happy.

Philly watched Elmo and Little Einsteins (to name a couple). He loved movies and going to the theater. He learned to play with toys, his fingers pressing keys and buttons. He communicated using a picture language, computer, and a "help me" switch.

Our Philly triumphed, learning to brush his teeth, feed himself (with assistance) and walk using his gait trainer. He loved to swim.


He did all these things...until he couldn't.

He was resilient...until he wasn't.

Philly died on January 1, 2018. His brain stem could no longer support his body's needs.

The mission of the Philly Baer Foundation grew out of Philly's persistence and that of his therapists. Their expertise, love and care strengthened him day-to-day so he could smile with what else...his entire face.

His life story is one of perseverance, resilience, sweetness and beauty. He made our hearts sing.

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