About Philly

Philly Baer came into the world on April 1, 2004 with PCH (Pontocerebellar Hypoplasia). This rare brain malformation caused multiple physical and cognitive handicaps.

​

Philly persevered.

​

Our Philly Baer. His laughter touched people's hearts. One couldn't help but listen and share in the moment. His entire face smiled, radiating joy.

 

He was a really happy kid, really happy.

​

Philly watched Elmo and Little Einsteins (to name a couple). He loved movies and going to the theater. He learned to play with toys, his fingers pressing keys and buttons. He communicated using a picture language, computer, and a "help me" switch.

​

Our Philly triumphed, learning to brush his teeth, feed himself (with assistance) and walk using his gait trainer. He loved to swim.

 

He did all these things...until he couldn't.

​

He was resilient...until he wasn't.

​

Philly died on January 1, 2018. His brain stem could no longer support his body's needs.

​

The mission of the Philly Baer Foundation grew out of Philly's persistence and that of his therapists. Their expertise, love and care strengthened him day-to-day so he could smile with what else...his entire face.

​

His life story is one of perseverance, resilience, sweetness and beauty. He made our hearts sing.